How did Bobby’s parents manage?

This summer while on a trip back to my childhood community, I visited a cousin who is now 90+ and living in a care facility. Eloise and I took a walk through the hallways and I was surprised to run into Bobby who is also a resident.

Bobby is the brother of one of my high school classmates. His family lived on a farm near ours, went to the same church, and was just always a part of the usual activities in the community. So, why do I mention Bobby? Well, it’s because Bobby has special health and behavioral needs. As a child and teenager, I didn’t think too much about Bobby – he was just Bobby and everyone helped take care of him. But as an adult, I look back and think, “How did his parents manage? How did they take care of Bobby and his brothers as well as give time to their marriage and personal lives?”

My guess is that while Bobby’s parents had their ups and downs, they took care of themselves. Providing care for a child with special health and behavioral needs means that the parents/caregivers are in it for the long haul. The caregivers must take care of themselves first so that they can take of their child.

Powerful Tools for Caregivers is a program for caregivers of children with special health and behavioral needs. Caring for a child with special needs changes parents’ lives. In this program parents learn tools to manage self-care. Here’s an example of one tool – taking action with stress reducers.

Participants in the classes learn to identify their personal warning signs and sources of stress. Then they think about what they have done to successfully reduce stress. People share things like: walk, visit a friend, listen to music, read, not try to do everything, play a sport, etc. Stress reducers are personal and what suits one person may not suit another.

The important point is to find ways to reduce stress – something that is enjoyable and works for you. Even little things can make a big difference for parents. As I remember, Bobby’s parents found ways to reduce stress. They were a part of church activities, Bobby’s dad played horseshoes with the neighborhood men, and Bobby’s mom tended pretty flowers in their yard.

If you’re interested in learning more tools to help you thrive as a caregiver of a child with special health and behavioral needs, check out Powerful Tools for Caregivers classes in your area.

 

Donna Donald

Donna Donald

Donna Donald is a Human Sciences specialist for Iowa State University Extension and Outreach who has spent her career working with families across the lifespan. She believes families are defined by function as well as form. Donna entered parenthood as a stepmother to three daughters and loves being a grandmother of seven young adults.

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